World Pulmonary Hipertension Day
National Association of pulmonary hypertension (ANHP) is a charity, non-profit, denominational and apolitical, whose purpose is the training, assistance and advice to the pulmonary hypertensive. Founded in the year 2004 and declared of public utility in November 2008.
Día Mundial de la Hipertensión Pulmonar
First celebration of the WPHD
The recognition and declaration of a World Pulmonary Hypertension Day is a step forward in the consolidation of worldwide PH awareness. World PH Day will focus on the importance of improving the quality of life and life expectancy of more than 25 million people living with PH worldwide.
Pulmonary Hypertension is a fatal disease that is difficult to diagnose. There are many types of PH, including idiopathic and hereditary PH, which are registered rare diseases in the Spanish Registry of Rare Diseases. However, PH is most common as a result of other health problems. May 5 is a significant day for the PH community because it marks the first pediatric PH death in Spain as a result of toxic cooking oil; this child died more than 30 years ago.
Regardless of its etiology, PH is defined as an increase in blood pressure in the pulmonary artery, pulmonary veins or pulmonary capillaries, together known as the lung vasculature. It is a severe disease with a markedly decreased exercise tolerance that leads to heart failure.
Objectives:
During the celebration of WPHD the patients’ organizations will launch messages on the need to:
- Increase awareness and disseminate knowledge of the disease to facilitate early diagnosis. Early diagnosis is important in decreasing premature PH related deaths.
- Promote access to specific healthcare and treatments that increase quality of life and life expectancy.
- Promote the concept of treating PH patients as a whole, which includes treating their physical, psychological and social issues.
- Unify international criteria for the recognition of Centers of Excellence in PH.
- Promote research that will help find a cure for PH.
ANHP is currently working to get a Declaration of Health Interest by the Spanish Ministry of Health as well as “curricular credits” for the Spanish physicians attending the Symposium.
| World Day Program Pulmonary Hypertension | |
|---|---|
| May 4 2012 | |
| Afternoon | Scientific Symposium on PH |
| Afternoon | ANHP General Assembly |
| May 5 2012 | |
| Morning | Scientific Symposium on PH |
| Afternoon | Official ceremony of the First WPHD Celebration |
| Gala cocktail | |
Scientific Symposium
SCIENTIFIC SYMPOSIUM PROGRAM
Partners
Official Ceremony
Speech Ceremony
Official Celebration WORLD PULMONARY HYPERTENSION DAY
World Pulmonary Hypertension Day endorsed by
Patients’ Organizations
PHA Europa (22 patients’ organizations)
PHA EEUU (235 patients’ support groups)
SLHP (19 patients’ organizations)
PHA Japan
PHA Canada
PHA Saudi Arabia
PHA South Africa
PHA Slovakia
PHA Israel
PHA Norway
PHA Sweden
Paraguayan Federation of Hypertension
PHA Poland
Venezuelan Foundation for Pulmonary Hipertension
PHA Hungary
PHA Latvia
PHA Italy (I)
Hungarian Society of respiratory patients
PHA Australia
Affected Association Pulmonary Hypertension
Foundation Against Pulmonary Hypertension
PHA Argentina
Other organizations
Slovak Federation for Rare Diseases
State Reference Center for Rare Diseases
Instituto Carlos III
EURORDIS
National Organization for Rare Disorders
Spanish Federation of Rare Diseases
European Lung Foundation
Spanish Patients Forum
Geiser Foundation
Scleroderma Foundation
Scientific Societies
American Thoracic Society
Slovak Society of Cardiology
Spanish Society of Pulmonology
Spanish Society of Cardiology
Spanish Society of Rheumatology
European Respiratory Society
Spanish Society of Internal Medicine
Spanish Society of Family and Community Medicine
Sponsors
Patrocinadores
Bayer (Platinum)
Lilly (Gold)
Pfizer (Silver)
Actelion (Silver)
gsk (Bronze)
Ferrer (Bronze)
United Therapeutics (Bronze)
Committees
| Comité de Honor | ||
|---|---|---|
| Excma. Sra Ana Mato | Ministerio de Sanidad, Servicios Sociales e Igualdad | Minister |
| Dr. Gerald Simonneau | Hospital Antoine Béclère | Head of Dept of Pneumology and ICU National Reference Center for Pulmonary Hypertension South Paris University |
| Sr. Gerald Fischer | PHA Europe | President |
| Dr. Lewis Rubin | Profesor Emérito de Medicina | |
| Sr. Rino Aldrighetti | PHA | President |
| Sra. Migdalia Denis | SLAHP | President |
| Dr. Nazareno Galiè | Universidad de Bolonia | Professor of Cardiology |
| Sr. Noriko Murakami | PHA Japan | President |
| Sra. Monica Fletcher | European Lung Foundation | Chair |
| Dr. Majdi M. Idrees | SAPH | President |
| Mr. Denneys Niemandt | PHA South Africa | Chairman |
| Comité Científico | ||
|---|---|---|
| Dr. Miguel Ángel Gómez Sánchez | Hospital 12 de Octubre | Cardiologist |
| Dra. Pilar Morales | Hospital La Fe de Valencia, Unidad de Trasplante | Pulmonologist |
| Dra. Dolores Nauffal Manzur | Responsable Unidad Hipertensión Pulmonar Hospital de la Fe | Pulmonologist |
| Dr. Adolfo Baloira Villar | Complejo Hospitalario de Pontevedra | Pulmonologist |
| Dr. Miguel García Ribes | Coordinador Genética Clínica y Enfermedades Raras de SemFYC | Primary Healthcare MD |
| Dra. Pilar Escribano Subías | Coordinadora Unidad Interdisciplinar 12 de Octubre | Cardiologist |
| Dra. Mª Jesús del Cerro | Hospital La Paz | Pediatric Cardiologist |
| Dra. María Jesús Castillo Palma | Grupo de investigación Colagenosis Hospital Virgen del Rocío, Sevilla | Internal Medicine |
| Dra. Paloma García De La Peña | Hospital Ramón & Cajal | Rheumatologist |
| Dr. Jaime Morales Blanhir | Director Dpto. Circulación Pulmonar ALAT | Pulmonologist |
| Sr. Daniel López | Unidad de rehabilitación Cardio-respiratoria Hospital Dr. Negrín | Physiotherapist |
| Sra. Esperanza Sánchez Gómez | Enfermera PAC Cambre | Nurse |